Nik has been doing so much better over the past few days. I could really tell a difference about 1 1/2 days after his blood transfusion. He is able to keep his blood oxygen level up better and he looks much less pale. And he is overall a bit more feisty!! The Dr. and nurses say they haven't heard his PDA (heart murmur) in the past few days. So, that's definitely helping him to get blood to his lungs. If it will just stay closed we will be in good shape with that issue. The Dr. also said they can reopen at any time for no reason at all. But we are hoping it will stay closed.
The Dr. has also put them on continuous feedings. They have tried extending their feeding over longer & longer periods of time, but finally decided to put them on a daily amount calculated by their weight that continually goes in over a 24 hour period. This keeps the boys from getting to full and spitting up...leading to desaturation...etc.
Jake is starting to look more pale. We noticed him being more pale on Monday, 5/30. But his O2 saturation level and heart rate are holding steady. The paleness is most likely due to his red blood cell, or hematocrit levels dropping. They are holding off on a blood test or likely hood of a transfusion until he becomes more symptomatic...like desaturating as his brother did a few days ago.
Weights as of 5/30
NIK - 1050 grams (birth weight 940)
JAKE - 1100 grams (birth weight 1105)
1 comments:
Go Jake ... you are almost back at birth weight!! Way to go Nick! grow grow grow :-)
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